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Prayer Request for New Nephew - Medical

makes me feel a little better. My nephew has had 3 holes in his heart since birth and they didn't find it until he was about a year old. All 3 holes were benign but they did find one larger hole on the electrical side. He is being transferred to a children's hospital in Chicago. His mom is staying with him there and they are doing everything they can to make sure he is okay. Please keep them in your thoughts.Debbie
janetupnorth
Gold Member
14,905
I forgot to share that I had a new nephew born Monday, June 25th! Jacob John.

Mom and baby were doing great until Mom put Jacob on her shoulder yesterday to burp him and he turned blue and almost passed out. We got a call this morning telling us.

After an EKG they have found 1 hole in his heart and 99% sure there is a second. He is being transferred to the Children's Hospital today and we'll hopefully know more later.

His mom (my sister-in-law) was the one in the car accident about 8-10 weeks ago that had broken both her ankles.

Please keep them in your prayers!
 
Janet-

My sister is a member of a group (out of Madison) for families with children who have heart issues. Would you like more information? Having a support group can make all the difference in the world.

(My nephew had 3 undiagnosed heart conditions at birth! But he's doing great now - it's his first b'day today!)

And adding your family to the prayer list. {{{hugs}}}
 
OMG how frightening! As if they haven't been though enough!??!
I will keep them in my prayers!
 
I have said a prayer and will continue to do so , Janet. Keep us posted.
 
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  • #5
chefann said:
Janet-

My sister is a member of a group (out of Madison) for families with children who have heart issues. Would you like more information? Having a support group can make all the difference in the world.

(My nephew had 3 undiagnosed heart conditions at birth! But he's doing great now - it's his first b'day today!)

And adding your family to the prayer list. {{{hugs}}}

I'll wait Ann and see how Lisa does, if she does want the information, I'll PM you. Lisa (mom) is a nurse. We have a niece who is 18 and was born with a hole in her heart and another SIL (Lisa's sister - mom of niece with hole in heart) who had a stroke 2 weeks before my wedding at age 34 and they found a hole in her heart too. They have no proof it is genetic yet (per research, still being studied), but this is the 3rd case in 2 generations, and they are pretty positive it skipped a generation and also has occurred in prior generations, but there isn't the medical records to show it.

Thanks for the prayers!
 
My younger sister was born with 3 holes in her heart. She went through a lot in her first couple of years, but she's doing great now - she just graduated high school this year! I agree with Ann, it's great to be a part of a support group (my mom was).

I will keep your nephew and family in my prayers!
 
Oh my goodness Janet!! I will pray for her and a speedy diagnosis and recovery.
 
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  • #8
No update yet this afternoon - it's driving me crazy to go all day without hearing about my nephew!

Well, off to pick up my kids after work and hopefully I'll have some news later tonight...
 
I just said a quick prayer
 
  • #10
I'll be praying!
 
  • #11
I just said a prayer... Keep us posted... HUGS!!!
 
  • #12
My mom had a stroke in December of 2002. They found out she had a hole in her heart and probably had it since birth. They even found that she had previous strokes but they didn't affect parts of her brain that mattered. CRAZY!! I will say a prayer for the baby and all of you! They can fix those holes!! Keep the faith.
 
  • #13
How scary!! Baylor is 3 weeks old today and I still have the hormones rushing though me- I can't imagine how she is coping with this only 3 days after giving birth. I will pray for your whole family and please update us when you can!
 
  • #14
Janet she will be in my thoughts and prayers
 
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Update: Jacob is not transferred yet, still at original hospital on a monitor in the neonatal unit. Mom is discharged today but staying at the hospital as a guest to be with the baby. She is a little shook up by all this even though there is a family history and her sister went through the same thing with her child.

The medical records were sent by courier to Chicago for a consultation but the courier was slow and the doctor wasn't available when the records got there. So, everyone is just in a holding pattern now until the doctor can review he records tomorrow. Jacob is doing o.k. so far.
 
  • #16
How sadShe will be in my thoughts and prayers. How sad, I can't imagine what she is going through.

Debbie :(
 
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  • #17
Update - FINALLY tonight. There is only one hole on the ventrical side. The specialist thinks it will close on its own in 7-10 days. That is AWESOME news!
 
  • #18
That's FANTASTIC news!!! Yeah!!! :D
 
  • #19
That is wonderful news Janet! Enjoy your new nephew:)
 
  • #20
That is great Janet!!! How will they know if it closes?
 
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  • #21
Thank you - more answered prayer! Yeah!
 
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  • #22
chefkristin said:
That is great Janet!!! How will they know if it closes?

They will do another set of images and check him in about a week.
 
  • #23
Janet,

Praying and thanking the Lord for holding little Jacob in His hands ...
 
  • #24
Janet,

I did get the website for the support group from my sister. I'm not exactly sure where you or your sister are located, but if you're looking for people to talk to, they can put you in contact with someone. The group is Mended Little Hearts, and their site is http://www.helpforlittlehearts.com/Index.html

BTW: my nephew is the 8th pic from the left at the top of the page
 
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  • #25
Thanks Ann! :)
 
  • #26
You're welcome.

I just found out that my aunt has had a hole in her heart since birth, and it wasn't diagnosed until 5 years ago. So it is possible to live a perfectly normal life, especially if your family is aware of the problem already.

Still sayin' a prayer for all involved.
 
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  • #27
chefann said:
You're welcome.

I just found out that my aunt has had a hole in her heart since birth, and it wasn't diagnosed until 5 years ago. So it is possible to live a perfectly normal life, especially if your family is aware of the problem already.

Still sayin' a prayer for all involved.

My SIL had a hole in her heart from birth. They found hers when 2 weeks before my wedding at age 34, she bent over in a bar to pick up darts and had a stroke.

They were able to patch hers through a vein in her leg. Her daughter, 10 years earlier at the time of surgery, had full open-heart surgery. Both are doing well nowadays. SIL has some short-term memory effects but not too bad.
 
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  • #28
Meet my new nephew guys!!!! I got to hold him on Sunday before I headed back up north.

He snuggled up to me and fell right asleep.

Here he is in mama's lap...

DSC00038.jpg


DSC00039.jpg


He still has 1 hole left the other closed, but it is only the size of a pin hole.
 
  • #29
AWWW!!! He is sooooo cute!!!!! I love those litte onesies-they are so snuggly! I am glad things are looking good for him!
 
  • #30
AWWWW he is sooo cute!!! I love them when their this small!!!!! I am glad things are going good for him and that the lord is watcing over him!!!
 
  • #31
What a doll I love the hair. I am glad that he is doing so good
 
  • #32
oh my word. he is too cute! congratulations auntie!
 
  • #33
Janet~

I just found out about this today and read through all of the posts since it showed up when I hit "new posts"

I am sooooooooo happy that God answered all of the prayers for him!

He is so adorable! Thanks for sharing the pictures with all of us!

:)
Kelly
 
  • #34
He's beautiful! What a wonderful answer to prayer.
 
  • #35
What a little cutie! The picture makes me want to snuggle him close and smell that sweet baby smell!

And What a great answer to prayer! God is good!
 
  • #36
What a sweet baby boy. Thank God prayers have been answered!

Things like this can be so nerve wracking. DH's cousin has 3 kids. The two girls have had repairs of holes in their hearts. My nephew, 8 years old had a repair done at Cleveland Clinic. His mom and grandma both have holes:eek: which were diagnosed after his. All his cousins on mom's side have been evaluated.
 
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Chef Endora said:
What a sweet baby boy. Thank God prayers have been answered!

Things like this can be so nerve wracking. DH's cousin has 3 kids. The two girls have had repairs of holes in their hearts. My nephew, 8 years old had a repair done at Cleveland Clinic. His mom and grandma both have holes:eek: which were diagnosed after his. All his cousins on mom's side have been evaluated.

That is SOOOO similar to our family. A little less than 10 years ago they tried to say it wasn't genetic but there are too many instances like this. I know when DH's sister was in the hospital in Myrtle Beach they were taking blood samples from his whole family to try to find a genetic link. That was about 8 years ago.
 
  • #38
AWE!! Look at the hair-LOL!!! He is such a cutie pie!!!!
 
  • #39
I am so happy he is doing so well! He really is such a cutey!

Lisa
 
  • #40
what a gorgous lil bundle!!!!! Congrats!!!!!
 

1. What happened to the new nephew?

The new nephew, Jacob John, was born on Monday, June 25th. However, his mother put him on her shoulder to burp him and he turned blue and almost passed out the following day.

2. What is the current status of the new nephew?

After an EKG, it was discovered that Jacob has one hole in his heart and there is a 99% chance that there is a second one. He is being transferred to the Children's Hospital for further treatment and updates on his condition will hopefully be available later.

3. Is this related to the car accident the mother was in?

Yes, the mother of the new nephew was involved in a car accident about 8-10 weeks ago which resulted in both of her ankles being broken. This could potentially have an impact on the baby's health and well-being.

4. What can we do to help?

The family is asking for prayers and positive thoughts for the new nephew and his parents during this difficult time. Any support and well-wishes are greatly appreciated.

5. Are there any updates on the new nephew's condition?

As of now, there are no updates on the new nephew's condition after being transferred to the Children's Hospital. The family is hoping to receive more information later and will keep everyone updated as they know more.

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