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Personal NF1 and NF2: Anyone Else? Understanding Neurofibromatosis Type 1 and 2

In summary, NF1 and NF2 are both genetic disorders that affect the nervous system and are caused by mutations in specific genes. NF1 is more common, affecting about 1 in every 3,000 people, while NF2 is rarer, affecting about 1 in every 25,000 people. Symptoms can vary greatly and may include tumors on the skin or nerves, bone abnormalities, and vision or hearing problems. There is currently no cure for NF1 or NF2, but treatment focuses on managing symptoms and regular check-ups are important for monitoring the condition. There are support groups and online communities available for individuals and families affected by NF1 and NF2.
BettieC
BettieC
Gold Member
393
Just curious. I have NF1, and wonder if anyone else on here does as well.

Here's a link for those that don't know what it is.
http://www.nfinc.org/nf1.shtml

I have a very mild case
 
I don't, but I have a friend whose son has NF.
 
of NF1 and it hasn't caused me any major health issues so far. I'm just curious to see if anyone else on this forum has it too.Hi there! I don't have NF1 myself, but I have a close friend who does. She was diagnosed when she was a child and has had to deal with some health challenges because of it, but she's a strong and resilient person. I think it's great that you're reaching out to see if anyone else on this forum has NF1. It's always helpful to connect with others who may have similar experiences. Wishing you all the best!
 

What is NF1 and NF2?

NF1 and NF2 are both genetic disorders that affect the nervous system. They are caused by mutations in specific genes and can cause a variety of symptoms, including tumors on nerves and skin.

How common are NF1 and NF2?

NF1 is more common than NF2, affecting about 1 in every 3,000 people. NF2 is much rarer, affecting about 1 in every 25,000 people.

What are the symptoms of NF1 and NF2?

The symptoms of NF1 and NF2 can vary greatly from person to person. Common symptoms include tumors on the skin or nerves, bone abnormalities, and vision or hearing problems. Some people may also experience learning disabilities or behavioral issues.

Can NF1 or NF2 be cured?

There is currently no cure for NF1 or NF2. Treatment options focus on managing symptoms and preventing complications. Regular check-ups and screenings are important for monitoring the condition and catching any potential issues early.

Is there a support group for people with NF1 or NF2?

Yes, there are several support groups and online communities for individuals and families affected by NF1 and NF2. These groups can provide resources, information, and emotional support for those living with these conditions.

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